Start by avoiding ableism and toxic positivity.
These were things I never had access to at the start of my patient journey 15 years ago. I couldn’t help but think how much more comfortable I might have been if they were available to me back then.
Because I spend all day studying pain and how it impacts patients like me, I thought I knew a lot about the best ways to manage my chronic pain. But working on an important new project taught me that I was wrong.
‘People believe that they “understand chronic pain” because they have also felt pain but it's a completely different thing when it's day in and day out for years.’
Michael Kuluva has been using his fashion line Tumbler & Tipsy to raise awareness for arthritis and chronic illness for years — and he knew he had to find a COVID-friendly way to keep it going.
‘Compared to what other people are giving up for us, this is nothing. It’s my little piece of what I can do to help.’
By CreakyStaff
The coronavirus (COVID-19) pandemic is especially stressful for people with chronic diseases. The Global Healthy Living Foundation (GHLF) has developed a FREE program for patients and their families to access updated information, community support, and other resources tailored specifically to...
By Dibs Baer
I didn’t need the PA and surgeon to tell me my neck was “major.” I knew it, yet I still doubted myself.
In the 28 years since we met, my husband has supported me through the stages of my multiple chronic conditions. But they have taken a toll on him, too.
You got this. I see you. Keep fighting. Gentle hugs.
‘We speak a certain language together only we can truly understand, through our shared lived experience.’
'A positive mindset will not cure my RA, but it will make it (and myself) a lot easier to live with.'
By Dibs Baer
These need to stop so we can actually get the support we need.
By Dibs Baer
Here’s a peek into what it’s like being a member of the RA club we never wanted join.
By Dibs Baer
Don’t panic, shop for a good doctor, and ask lots and lots of questions.
For starters, remember this: ‘You are not your illness.’
Loneliness kills. Feeling lonely on a regular basis can shorten your lifespan by 26 percent, making it deadlier than obesity or alcoholism, according to a study published in the journal Perspectives on Psychology. One of the biggest risk factors for...
RA took away Eileen Davidson’s career and made being a single mother even more challenging. Here’s what helped changed her perspective on a devastating diagnosis.
#Spoonie women, you got this.
Like having the flu. Like you’re a real-life Tin Man. Like there’s always ‘radio static’ in the background. Which of these descriptions capture how arthritis makes *you* feel?
What it “in sickness and health” really means when you have chronic illness.
Tired of making new year's resolutions you never keep? Select an inspiring mantra to live by instead.
There's tired. And there's fatigue from chronic illness. Please don't confuse the two.
In one study, 35 percent of people with RA had stopped working 10 years after their diagnosis.
Nearly half of all Americans live with some type of chronic illness, according to the National Health Council. If that stat sounds bigger than you thought it’s probably because one of the worst parts of having an ongoing disease is...
By Dibs Baer
Some of these might sound harsh, but keeping lines of communication open is so important.
CJ blogger, The Unexpected Advocate, writes about a tough issue.
By 
By 
By 
By 
By 
By 
