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By Charis Hill
Living with ankylosing spondylitis has trained me for paying attention to subtle changes in my symptoms and paying close attention to my body’s clues. Here’s what they told me when I was worried I had coronavirus.
Ankylosing spondylitis and psoriatic arthritis can present very differently in some patients and very similarly in others.
Amy Millios experienced symptoms for more than a decade before she got a diagnosis —and, even then, it was a struggle to get doctors to believe her.
In the 28 years since we met, my husband has supported me through the stages of my multiple chronic conditions. But they have taken a toll on him, too.
The disease-modifying drug could help improve the effectiveness of biologic medications in axSpA.
More evidence suggests that these are variations of the same disease and should be treated similarly.
‘I knew that if I had to face the day I couldn’t just wake up, hop out of bed, and move as quickly as the rest of New York City.’
‘For me, showering has always been a gauge for my disease activity. The more inflammation coursing through my body, the more difficult showers are and the longer it takes me to get ready in the morning.’
These gentle exercises can help soothe pain and stiffness when arthritis strikes in your feet.
‘In a strange way, I was relieved to be diagnosed. And on some other, deeper, quieter level, I felt a connection to my family in an ancestral way.’
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