Tien Sydnor-Campbell uses her book and background in psychotherapy and bodywork to help inspire others with chronic illness to accept their pain and advocate for better care.
In recognition of Rheumatoid Arthritis Awareness Day, patient advocate Eileen Davidson shares answers to the most common (and bizarre) questions people ask her about living with RA.
Raven Miller, a single mom and creator of Raven Takes RA, shares her journey with rheumatoid arthritis, and how she finally reached a place of balance, optimism, and strength.
Sadly, flares and RA go hand and hand but asking yourself these key questions can help you determine if self-care can help, or if it’s time to strategize with your rheumatologist to feel better.
Try these tips for keeping your immune system strong and staying protected during the "tripledemic."
New study led by the Hospital for Special Surgery drives home the importance of the patient perspective in research, education, diagnosis, and care.
Taking time to think about what keeps you happy and healthy (and what causes pain and fatigue) can help bring you more joy this holiday season. Make a list — and check it twice.
For people with chronic illness, imposter syndrome leaves them with the illusion that their symptoms are “in their head.”
Planning and cooking an extravagant menu when you have rheumatoid arthritis (RA), or another chronic illness, can be stressful. To the rescue: A few tips to ease the burden of holiday meals.
When it comes to celebrating this holiday season, setting boundaries is a must for people living with chronic disease.
Mourning the loss of a loved one is especially painful during the holiday season. We talked to CreakyJoints community members and Laurie Ferguson, PhD, for advice on managing the emotional and physical toll of grief.
Ten years of self-injections have made me despise my weekly methotrexate injection — here’s how I’m coping.
"Doing contract work at home allows me to move at my own pace and it gives my joints the time they need to get going...I stay busy but self-care is prioritized over work."
Two new studies explore the unique health journeys, perspectives, and needs of Spanish-speaking patients with RA.
Getting a diagnosis of seronegative rheumatoid arthritis brought feelings of relief and disbelief for patient and researcher Dr. Shilpa Venkatachalam.
Patient advocate Wigna Cruz shares her experience participating in an advisory board for Spanish-speaking patients with RA — and how it evolved into a flourishing support group.
How rheumatoid arthritis patient Vanessa Kerr overcame the challenges of limited access to care in a rural area.
Patient advocate Stephanie Aleite explores how calculating an event’s value could help people living with chronic illness prioritize how they expend energy and improve their social support and well-being.
“My diagnosis of RA came with significant loss. Several years later, I can proudly say I have gained more than I lost. I am a better person because of the things that RA took away.”
"Finding that balance between too much and too little is a true artform that takes years to learn with rheumatoid arthritis."
Whether in the beginning, middle, or end, the school year can be exhausting for parents with chronic illness. Try these tips to help you save energy and stress.
Looking for a way to remind yourself about daily goals, self-care, and overall good mental well-being? Here's how a game-like app can help.
Rheumatoid arthritis patient and family nurse practitioner Stefanie Remson shares how she’s managed the feelings of depression, anxiety, loneliness, and inadequacy that came with her diagnosis.
“No matter how strong I think I might be, or no matter how tough or stoic, the relentless grinding and repetition of this waiting cycle wears on me as a patient. It used to dig into me until I began to bring sensory items with me to help me cope.”
In honor of World Heart Day, JP Summers, Patient Advocate, Community Outreach Manager at the Global Healthy Living Foundation, shares her experience with heart failure — and what lessons you can take away too.
Patient advocate Shelley Fritz shares her infusion day diary, including what she does before, during, and after each infusion and what lessons she's learned over the past decade.
“Having RA has given me an opportunity to be kinder to myself, love myself unconditionally, and to help so many more people in the RA community find this place of peace."
“Managing my RA taught me how to let go of control, blame, and shame,” says Jennifer Gabiola. “It became a holistic spiritual journey not only of physical healing, but of coming back home to me.”
For patient advocate Jennifer Walker, the emergency room is not a safe, welcoming space. Here’s why — and how other patients with multiple chronic illnesses can learn from their experience.
Patient advocate Eileen Davidson finds these all-too-common phrases rude, naive, and unsupportive — and you may too.
"Much like my basil, I don’t do well in the heat either. I joke with friends that there are only a few months out of the year that my body really likes — in the winter my bones ache from the cold, and in the summer heat, I wilt as fatigue and deep muscle exhaustion sets in."
“COVID-19, the Uvalde school shooting, and now Roe vs. Wade has been overturned…I am bone tired. Tired from the inside out of my bones.”
Rheumatoid arthritis and migraine patient advocate JP Summers reflects on the lessons learned over the past 10 years as she and her family have had to adjust to the realities of life with chronic illness.
Andy Pendergrass believes in leading by example. And he’s showing sons Cal, 5, and Freddy, 1, that when life throws you a curveball you can still hit it out of the park.
“I refuse to smash my emotions down inside myself so I can put on a happy face and make other people feel better. I will not pretend like I have learned a fantastic lesson when my body and my life are falling apart in this moment — I need time to cry and scream into a damn pillow," says patient advocate Jennifer Walker.
Patient advocate Eileen Davidson takes an honest look at her seven-year RA journey and shares the mistakes she made shortly after being diagnosed, along with tips on how to adapt and advocate early on.
Painsomnia. Medication hangovers. Out-of-nowhere symptoms. Eileen Davidson may not have the solutions for these RA frustrations and more — but she hopes sharing them validates what you’re feeling too.
Many people with chronic illness suck at asking others for help. Here’s what you can do to make it easier for them to cope with a disease flare.
Rheumatoid arthritis is serious. If you have it, you need to take it seriously. If you love someone who with RA, you need to understand what they’re living with every day.
Flare fear is a heightened state of anxiety that my disease symptoms will pop out of nowhere, says rheumatoid arthritis patient Eileen Davidson. Here’s how she handles the tricky balance of living her life and being imprisoned by flare fear.
“Having self-love gives me motivation for self-care. Practicing self-care reaffirms my self-love,” says advocate Eileen Davidson, who lives with rheumatoid arthritis and other chronic conditions.
After noticing a pattern of worse flares than usual, especially right before infusion time, RA patient Dibs Baer wonders whether the biologic medication is wearing off — and, if so, what to switch to next?
“I’ve made some steps to try and better my heath,” says Russ Miller, a 36-year-old rheumatoid arthritis patient. “I want a better quality of life and want to be happy again, because I haven’t been for many years.”
Having needle anxiety is tough when you take medication that requires monthly intravenous infusions. Here’s how rheumatoid arthritis patient Eileen Davidson learned to get through infusion day without as many jitters.
When she was diagnosed with rheumatoid arthritis (RA) at 16, Guadalupe Torres faced linguistic and cultural barriers that impacted the way she viewed the health care system. Now, fueled by her past and the experiences of other Spanish-speaking patients, she is hoping to change the system.
Spanish-language resources from CreakyJoints Español helped Wigna become a more empowered rheumatoid arthritis (RA) patient and build out her support system.
These kinds of comparisons may be more harmful to people with arthritis — or any chronic illness — than you might realize.
“Hiking has become a victory — albeit, a small one — over rheumatoid arthritis. I am proving to myself and others that I will not let rheumatoid arthritis win; that with a few adaptations I can still live and enjoy life," says Eileen Davidson, who has rheumatoid arthritis and osteoarthritis.
When rheumatoid arthritis patient and fashion designer Michael Kuluva approached Eileen Davidson to help design a T-shirt to promote arthritis awareness, she embraced her own ‘fierce fight’ to help inspire and support others.
“Before I was diagnosed with rheumatoid arthritis, I didn’t really think about the way heat could impact my body and mind,” says Eileen Davidson, a rheumatoid arthritis patient. “But RA changed all of that that.
When I was diagnosed with this chronic illness at age 29, I was expecting joint pain. I didn’t expect to feel like I was hit by an 18-wheeler.
Telling anyone they are too young to live with a condition is more inflammatory than it is reassuring or supportive.
First: Rheumatoid arthritis is not just ‘arthritis.’
RA took away Eileen Davidson’s career and made being a single mother even more challenging. Here’s what helped changed her perspective on a devastating diagnosis.