‘Art helps me process my experiences as they are happening, helps me connect with others when I feel completely alone, and helps me create pieces that express what is happening when the limitation of words clamps down on me.’
“When it fills me up, it becomes the dominant force in my body. But it also drains me of who I am because all I can do is barely manage it until I can get some rest.”
“Exhaustion, lack of sleep, daily fatigue, and depression all meld together — and I don't know where one begins and the other one ends.”
“This piece is so representative of how pain and fatigue are intertwined for me. It is a conversation we never have with our doctors.”
“I felt so much heat and pain in my hips that I thought those bones had been replaced by molten lava. I could not sit or stand or move without making the pain worse.”
“As the pain got worse and worse, I lost the ability to talk. All I could do was cry and make these guttural sounds.”
“The pain was so intense that I just imagined the inflammation in my body kind of like sulfuric acid.”
“I felt like bolts of lightning were being shot through my foot.”