Keep track of your symptoms and help advance research with PatientSpot

As a chronic disease patient, you can make a difference in the fight against chronic disease and related conditions...

Listen to the new season of "Thriving While Aching"

A podcast that inspires and teaches you how to live a fuller life while safely managing pain.

Listen to the 'Talking Head Pain' Podcast

Join migraine patients as they explore the challenges, hopes, and triumphs of living with migraines.

Do You Know About IgG4-Related Disease?

Learn about this rare, multi-organ autoimmune disorder and hear inspiring stories from real patients.

Immunocompromised? What to Do If You Get Pushback for Wearing a Mask in Public

If someone gives you a hard time for wearing a mask, here’s how to react and protect yourself.
Support
Keep track of your symptoms and help advance research with PatientSpot
Support
Listen to the new season of "Thriving While Aching"
Support
Listen to the 'Talking Head Pain' Podcast
Support
Do You Know About IgG4-Related Disease?
Coronavirus, Daily Living During COVID-19, Living with Arthritis
Immunocompromised? What to Do If You Get Pushback for Wearing a Mask in Public
An illustration of a man with arthritis, as evident by red pain spots, talking to his doctor
About Arthritis, Rheumatoid Arthritis, Rheumatoid Arthritis Treatment & Care

How Helping to Create the Latest American College of Rheumatology Rheumatoid Arthritis Treatment Guidelines Gave One Patient ‘Faith in the Process’

Treating a rheumatic disease like rheumatoid arthritis can require a lot of trial and error, which makes treatment guidelines like those from the American College of Rheumatology’s (ACR) so important. The guidelines are rooted in the latest scientific research, but Shilpa Venkatachalam, PhD, MPH, Associate Director of Patient-Centered Research at the Global Healthy Living Foundation, reassures patients that their experiences play an important part too.

Continue reading
An illustration of two people having a conversation. One person has a speech bubble saying “But you don’t look sick.” The other person looks disheartened.
Living with Arthritis, Patient Stories

‘But You Don’t Look Sick’ Is Not a Compliment to People with Chronic Illnesses

“It’s not a compliment,” CreakyJoints user Rachel M. said of being told she doesn’t look sick. “It’s heard as an undermining of the fact that I feel like poop. The reality is that I’m in pain and exhausted every single day.”

In our Arthritis Awareness Month campaign that sought to raise awareness of the challenges of living with invisible illnesses, one theme emerged over and over. Telling people with arthritis and other chronic illness that they don’t look sick invalidates and undermines how they feel.

Continue reading