In 2017, CreakyJoints lived up to our mantra of “bringing arthritis to its knees.”

Natalie B. (CJ Member); Shilpa Venkatachalam, Associate Director, Patient-Centered Research; Shantana H. (ArthritisPower Patient Governor) take a photo at New York Fashion Week.

We increased our footprint in the world with the launch of CreakyJoints Australia, began planning 2018 patient-centered programming in Latin America and Europe, conducted more than 25 major research projects, and of course, had fun by raising awareness at New York Fashion Week.

Join us in celebrating our 2017 highlights. Be proud because we did this together.

We fought to ensure our community was heard

Donna-Lee, D. (50-State Network Member) shares her story at the Massachusetts Statehouse.


We educated our community


We made sure patients were central in research

Benjamin Nowell (Director, Patient-Centered Research) speaks about that importance of patient-centered research.


  • We registered more than 9,000 people in ArthritisPower and captured over 77,000 patient-reported outcomes, bringing our total to over 12,000 ArthriitsPower users and 97,942 patient-reported outcomes
  • We published important research on pregnancy
  • We developed or contributed to eight research presentations at the American College of Rheumatology Annual Meeting and five research presentations at the European League Against Rheumatism Congress

We supported our community

CJ Members Tien S. and Nicole D. live broadcasting from the American College of Rheumatology conference in San Diego.


Looking ahead

As the year came to a close, we posed a few questions to Global Healthy Living Foundation co-founder Seth Ginsberg about what happened in 2017, and what he foresees next year.

What in the past year was most encouraging to you?

SG: It’s encouraging how many people have accessed our materials, resources, support, and participated in our advocacy and patient-centered research opportunities. This year more than 12,000  used ArthritisPower, and more than 1 million people accessed the education and support materials from Amazing growth this year!

Where, do you think, is there the most room for improvement?

SG: We have a lot of room for improvement in reaching under-served communities, especially people who do not speak English. We’re disappointed at how devastated the island of Puerto Rico was by Hurricane Maria, and we are glad to have done our part to help — raising more than $44,000 for our Puerto Rico Rheumatology Relief fund.

In the coming year, we plan to do much more to support the needs of Spanish-speaking people both in the United States and throughout Latin America.

What do you think are likely to be some of the most important developments in 2018?

  • We will continue to expand ArthritisPower, with better integration into the doctor’s records or health system records, as well as improved functionality and better features for patients and their families.
  • We will improve our Spanish-language capabilities and services offered to those who are not native English speakers.
  • We will be launching a set of resources to help people navigate their health insurance (or lack thereof) when living with a chronic disease like arthritis. The helpful ‘insider’s guide to managing your health insurance’ was developed for patients and by patients, with finishing touches being made this December and a planned launch for January, 2018 (look for it on