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MEDIA CONTACT
Jessica Daitch
Phone: 917-816-6712
Email: jdaitch@ghlf.org
Poster to be Presented at the Annual European Congress of Rheumatology (EULAR 2018)
UPPER NYACK, NY (June 13, 2018) – On June 14, CreakyJoints® will present a poster at the Annual European Congress of Rheumatology (EULAR 2018) meeting in Amsterdam, Netherlands. Two additional abstracts were accepted for publication.
Utilizing the ArthritisPower™ research registry, which now boasts more than 15,000 consented patient participants, the poster titled, “Barriers to Rheumatoid Arthritis Treatment Optimisation: Real-World Data from the ArthritisPower Registry,” reports data from a registry sub-study of 257 rheumatoid arthritis (RA) patients who experienced high disease activity as measured by the RAPID3 (median 18.0 on 0–30 scale) despite 70 percent (180/257) being treated with DMARDS (non-biologic or biologic). However, of those, only 37 percent (67/180) were offered a treatment change at their last physician visit, with 72 percent agreeing to a switch (48/67). Most patients intensified their treatment (33/44, 75 percent) because their symptoms remained bad or worsened, whereas only 36 percent of patients elected to change therapies because they did not reach pre-determined treat-to-target goals.
“Our findings indicate that patients are highly deferential to their physician’s recommendations for treatment escalation,” said W. Benjamin Nowell, Ph.D., Director of Patient-Centered Research, CreakyJoints and an ArthritisPower co-principal investigator. “At the same time, it’s concerning that rheumatologists and patients may not be effectively engaging around treat-to-target goals even when symptoms, lab results, or patient-reported outcomes data reported via ArthritisPower warrant such discussion. This study suggests that people living with RA need to feel empowered to discuss and consider treatment escalation with their doctor when both agree that a change is merited.”
The study was conducted with support from UCB Pharma.
Overview of CreakyJoints Data at EULAR 2018
- Barriers to Rheumatoid Arthritis Treatment Optimisation: Real-World Data from the ArthritisPower Registry
Identifier: THU0159
Poster presentation: June 14, 2018 at 11:45 a.m. CET. - Correlation Between RAPID3 and PROMIS10 in Patients with Ankylosing Spondylitis
Identifier: AB0849
Published abstract - Correlation Between RAPID3 and PROMIS10 in Patients with Psoriatic Arthritis
Identifier: AB0904
Published abstract
About ArthritisPower
Created by CreakyJoints and supported by a multi-year, multi-million dollar investment by the Patient-Centered Outcomes Research Institute (PCORI), ArthritisPower is the first ever patient-led, patient-centered research registry for joint, bone, and inflammatory skin conditions. The free ArthritisPower mobile and desktop application allows patients to track and share their symptoms and treatments while simultaneously participating in research in a secure and easy manner. ArthritisPower Patient Governors serve as gatekeepers for researchers seeking to access registry data or solicit the community to participate in unique, voluntary studies. To learn more and join ArthritisPower, visit www.ArthritisPower.org
