The Psoriatic Arthritis Club

The Psoriatic Arthritis Club

You don’t have to manage PsA alone. This podcast can help.

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No one asked to be part of this club, but having the right support can make a big difference in your ability to live better with psoriatic arthritis.

The Psoriatic Arthritis Club is a podcast series hosted by Deanna Kizis, an author and journalist who was recently diagnosed with PsA — but she’s never met anyone else who has the condition too. Until now. 

Through personal chats with fellow psoriatic arthritis patients, as well as insights from top PsA experts, Deanna explores the ups and downs of navigating psoriatic arthritis. You’ll hear how other people learned how to manage their symptoms, partner with their health care providers, advocate for better care, adjust emotionally, and more. Plus, you’ll pick up plenty of life hacks and tips and tricks along the way.

The Psoriatic Arthritis Club Episodes

Check out the first episodes of The Psoriatic Arthritis Club below and wherever you listen to podcasts. Be sure to subscribe for access to future episodes. Tell your family and friends to listen, too, so they understand what PsA is all about.

Episode 1: Lauren’s Story: A Personal Trainer Who Doesn’t Want to Push Through the Pain

Imagine exercising for a living, then being diagnosed with a condition that makes picking up weights almost too painful to bear. When Lauren was diagnosed with PsA, she had a lot of concerns about what it would mean for her professionally (as a trainer) and personally (as a mom of young children). “As a personal trainer, I can’t just tell people to work out,” Lauren says. “I have to live the lifestyle that I preach. However, if I am flaring, it is hard, and I have to really listen to my body and know what I can handle.”

Episode 2: Diane’s Story: It’s Never Too Late to Start Getting Good Care

Diane should have been diagnosed with PsA well before she actually was. As a woman of color who grew up poor, she endured decades of inadequate treatment, misdiagnosis, and stigma. But she also learned a lot about how to turn things around and advocate for better care. “Someone told me a bunch of years ago, you have a voice, use it,” Diane says. “That had to be the best advice ever. Use your voice.”

Episode 3: Eddie’s Story: 20 Years of Life Lessons for Coping with PsA

Eddie’s PsA story involves a relatively quick journey to getting diagnosed and on treatment. But he’s had his share of challenges along the way, and that means plenty of wisdom to impart about the many curveballs that PsA can throw your way. “If you don’t say something, then nothing’s going to change,” Eddie says. “[Doctors are] wonderful people. But clairvoyance is not something that is taught in med school.”

Psoriatic Arthritis Patient Audio Guides

Want to learn more about managing PsA? Our Patient Audio Guides offer information and insights from leading psoriatic arthritis experts so you can be more informed — and take better care of yourself or a loved one. Check them out below and wherever you listen to podcasts. Be sure to subscribe for access to future episodes.

Audio Guide: Understanding Psoriatic Arthritis Symptoms

Learn more about the range of symptoms you can experience with psoriatic arthritis, the importance of talking to your doctor about all of your symptoms in order to help improve your care, and how doctors and patients can use a measure like minimal disease activity to make sure that your PsA symptoms are getting better across the board.

Audio Guide: Understanding Psoriatic Arthritis Treatment

Learn more about the medication treatment options available for psoriatic arthritis, the importance of treating inflammation to reduce the risk of joint damage and other complications, and why your doctor needs to know about all your PsA symptoms in order to help pick the right treatment approach for you.

Audio Guide: Understanding Healthy Lifestyle Changes for Psoriatic Arthritis

Exercise, diet, stress and mental health and more: Learn more about healthy lifestyle changes for psoriatic arthritis and how lifestyle changes and medication work together to help you manage your condition.

BEHIND THE MIC

The Psoriatic Arthritis Club features host Deanna Kizis, a PsA patient looking to connect and learn from other people living with PsA, and insights from top psoriatic arthritis experts.

PsA Behind the Mic Bio Headshots_Deanna

Deanna Kizis

Deanna Kizis is an author, journalist, and screenwriter who has written two novels, a children’s book, and more articles than she can count about culture, health, architecture, design, Hollywood, and broken hearts. Her work has appeared in Glamour, Allure, Self, Vanity Fair,The Hollywood Reporter, Variety, Los Angeles Magazine, Cosmo, Details, Redbook, Nylon, Hunker, Elle Décor, Architectural Digest, Domino and more. Diagnosed with psoriatic arthritis two years ago, Deanna is a reluctant member of this “club” but says that working on this podcast has given her hope and a valuable connection to those who are also living with PsA.

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PsA Behind the Mic Bio Headshots_Eric

Eric Ruderman, MD
Rheumatologist

Dr. Ruderman is a rheumatologist and the Associate Chief, Clinical Affairs for the Division of Rheumatology at Northwestern University, where he has been running a psoriatic arthritis clinic with dermatology colleagues for nearly 20 years.

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PsA Behind the Mic Bio Headshots_Grace

Grace Wright, MD
Rheumatologist

Dr. Wright is a consultant rheumatologist in New York City and served as Clinical Associate Professor of Medicine at NYU Medical Center. She is the President of the Association of Women in Rheumatology (AWIR).

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PsA Behind the Mic Bio Headshots_Alexis

Alexis Ogdie, MD
Rheumatologist

Dr. Ogdie is a rheumatologist and Associate Professor of Medicine and Epidemiology at Hospital of the University of Pennsylvania. She specializes in conducting research on psoriatic arthritis and treats PsA patients in the Psoriatic Arthritis Program at Penn Medicine.

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More Resources

Living with psoriatic arthritis (or caring for someone who is coping with psoriatic arthritis) isn’t easy. There’s a lot to learn about symptoms, treatments, and staying healthy. CreakJoints, a non-profit patient community for people living with arthritis and rheumatic conditions, has plenty of resources, always free, to provide help and support.

Types and Domains of Psoriatic Arthritis

The Different ‘Types’ of Psoriatic Arthritis — and Why Knowing Your Type Matters

Psoriatic arthritis is not a one-size-fits-all condition, which can make finding the right personalized treatment more challenging.

 

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Psoriatic Arthritis Symptoms

Psoriatic Arthritis Symptoms You Can’t Afford to Ignore

Psoriatic arthritis is not just a different kind of rheumatoid arthritis.

 

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Psoriatic Arthritis Stages and Progression

Stages of Psoriatic Arthritis: Signs of Early to Late Disease Progression

Psoriatic arthritis is not a one-size-fits-all disease, and the stages and progression are not straightforward or uniform from patient to patient.

 

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Psoriatic Arthritis Flares: Symptoms, Causes, Treatments

Psoriatic Arthritis Flare-Ups: What to Do When You Get One

Here are the main clues a psoriatic arthritis flare is coming, and how to make it go away more quickly.

 

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Cartoon shows the difference between a normal nail, pitting, onycholusis, subungual hyperkeratosis, ridging, thickening, crumbling and color changes

7 Ways Psoriatic Arthritis Can Change Your Nails (and How to Avoid It)

Up to 90 percent of people with psoriatic arthritis have nail involvement. Here’s how to treat or prevent PsA nail problems.

 

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How Psoriatic Arthritis Affects Feet

What Psoriatic Arthritis Does to Your Feet

Foot problems are common in psoriatic arthritis. Here’s what you can do about it.

 

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The Psoriatic Arthritis Club is a new podcast series produced by the non-profit Global Healthy Living Foundation, its arthritis patient community CreakyJoints, and made possible with support from AbbVie. Through personal chats with fellow psoriatic arthritis patients, as well as insights from top PsA experts, host Deanna Kizis explores the ups and downs of navigating psoriatic arthritis.