Raising the Voice of Patients: A Patient’s Guide to Family Planning with Rheumatic Diseases

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CreakyJoints is excited to announce a first-of-its-kind document, Raising the Voice of Patients: A Patient’s Guide to Family Planning with Rheumatic Diseases.

Download Your Free Copy

Please fill out the form below to download the inaugural Family Planning patient guidelines for free.

About the Patient Guidelines

If you haven’t had a chance to see our Patient Charter, please take a look! It spells out clearly what it means to us to be patient-focused, and it gets at the core of our mission.

There are, of course, many sets of recommendations designed to help medical professionals deliver the best care possible — including the American College of Rheumatology’s clinical practice guidelines. In those guidelines, the ACR offers guidance on “particular patterns of practice and not to dictate the care of a particular patient.” That’s an invaluable tool for doctors to use when they weigh different treatment options, but those guidelines are written for professional, rather than lay readers. For patients who haven’t graduated medical school, the language can be a challenge, to say the least.

In the guidelines, you’ll find in-depth yet accessible explanations of the following:

  • How your disease may impact your pregnancy
  • Safe and unsafe medications
  • Labor and delivery
  • Post delivery issues

One important note. These guidelines absolutely aren’t a replacement in any way for heeding the advice of your treating physician. You should never trust anyone or any document that purports to do that. We see this set of recommendations as a tool to help prepare you for your meetings with your physician. Think about it as a one stop shop for PsA information, so you’re prepared to then dig deeper and better understand some very technical terms and concepts.

In the effort to help patients living with disease, several professionals overlap: doctors, surgeons, nurses, other medical professionals, insurers, legislators, and others. Everyone is committed to the same end goal, but that doesn’t always mean that everyone has the same seat at the table, or that patients have as much control of their destinies as they could. This handbook helps restore that balance.

These patient guidelines for family planning were made possible by the generous support of UCB.