This podcast offers patient-friendly insights into clinical trials — from the perspectives of a patient, a care partner, and a health care provider.
In this new podcast series, we sit down with a lupus patient who has participated in a clinical trial, her sister who serves as her advocate, and a principal investigator involved in several clinical trials. Together, they share their personal experiences, the challenges they’ve faced, and the valuable lessons they’ve learned.
LISTEN TO OUR EPISODES
You can check out the Clinical Trials Talks series below or wherever you listen to podcasts. Be sure to subscribe for access to future episodes and email us at podcasts@ghlf.org with any feedback or ideas for future episodes. Tell your family and friends to listen, too, so they better understand what is involved in clinical trials.
CLINICAL TRIALS TALKS: AUDIO GUIDES
Get clear, patient-friendly guidance on lupus clinical trials through our audio guides, covering everything from trial basics to debunking common myths.
Audio Guide 1: Clinical Trials 101
In this audio guide, we talk to Dr. Philip Mease, a rheumatologist and principal investigator on several lupus clinical trials. He walks us through some common questions about clinical trials for lupus to help you better navigate this potential opportunity for treatment.
Tune in to learn how clinical trials work and how they may offer a possible step toward better managing your condition.
Audio Guide 2: Myths About Clinical Trials
Curious about lupus clinical trials but unsure what’s fact or fiction? In this audio guide, Dr. Philip Mease, our clinical trial expert, breaks down common myths and answers key questions to help you understand this potential treatment path.
Learn the facts and get the insights you need to make informed decisions about your care.
You can also listen to Clinical Trials Talks directly on Apple Podcasts, Spotify, YouTube Music, and Amazon Music.
BEHIND THE MIC
Philip J. Mease, MD
Philip J. Mease, MD, is a Clinical Professor at the University of Washington and Director of Rheumatology Research at Swedish Medical Center in Seattle. Practicing at Seattle Rheumatology Associates, he earned his degrees from Stanford University and completed his residency at the University of Washington. Dr. Mease leads clinical trials on rheumatic disease therapies and researches disease metrics. He co-chairs three OMERACT working groups, is a founding organizer and President of GRAPPA, and has published nearly 400 journal articles and 18 book chapters.
Susan Jara
With over two decades of experience in both digital and print media, Susan Jara is a passionate editor and writer dedicated to empowering patients through accessible, engaging health content. As the Director of Patient Education at the Global Healthy Living Foundation, she creates patient-centered educational materials, including articles, newsletters, podcasts, and audio guides.
MORE RESOURCES
There’s a lot to learn about clinical trials. CreakJoints, a non-profit patient community for people living with arthritis and rheumatic conditions, has plenty of resources, always free, to provide help and support.
How to Prepare for Lupus Clinical Trials
With careful planning, you can feel confident in making informed decisions about joining a lupus clinical trial and having a meaningful experience.
Managing Lupus Symptoms During a Clinical Trial
With the right knowledge and preparation, participating in a clinical trial could offer new opportunities to monitor and understand your lupus.
Finding Emotional and Practical Support During Lupus Clinical Trials
The right support system can make an incredible difference in your well-being throughout a lupus clinical trial.
SUBSCRIBE FOR MORE CLINICAL TRIAL RESOURCES
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Clinical Trials Talks is a new podcast series produced by the non-profit Global Healthy Living Foundation, its arthritis patient community CreakyJoints, and made possible with support from Bristol Myers Squibb.
