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BeTTER SAID

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BeTTER SAID

BeTTER SAID

Bringing STakeholders Together for Engagement in Research for the Selection of Arthroplasty Implant Devices

Joint replacement surgery can be a pain. Talking about it shouldn’t be.

Patients, clinicians, & researchers partnering together to address the safety of joint replacement

BeTTER SAID is a coalition of patients, patient advocates, researchers, physicians/surgeons, and health system leaders that examined strategies to improve implant device safety over time. This project focuses on orienting arthroplasty patients to relevant research processes and terms, and trains patients and clinicians to participate in the prioritization, implementation and dissemination of future studies in device safety and selection. We engaged our stakeholders in a three-stage series of training webinars, round table discussions, and summarizing webinar.

View the summarizing webinar below to learn more from our experts on how patients can partner to improve research in joint replacement. Our guest speakers include:

  • Rachael Fleurence, PhD, Medical Device Innovation Consortium (MDIC), National Evaluation System for Health Technology (NEST)—Implications for Arthroplasty Research and Surveillance
  • Susan Goodman, MD, Hospital for Special Surgery, Incorporating Input from a Patient Panel into Treatment Guidelines—The Experience of the ACR/AAHKS Perioperative Medication Management Guideline Project
  • W. Benjamin Nowell, PhD, MSW, Global Healthy Living Foundation / Thomas Concannon, PhD, RAND Corporation, Framework and Guiding Questions for Engaging Patients and Other Stakeholders as Research Partners
  • Christine Stake, PhD, ArthritisPower Patient Governor Group, Findings from Patient and Multi-Stakeholder Discussions to Address the Safety of Joint Replacement

For more information

  • Contact Co-Lead Ben Nowell at bnowell@ghlf.org if you are a researcher and are interested in knowing more about this initiative or on how you can involve patients in research to improve the safety of hip and knee replacement (arthroplasty) devices.
  • Contact Shilpa at svenky@ghlf.org if you are patient and are interested in learning more about how you can partner in research.

“Research into the safety of artificial joints would be BeTTER SAID if patients are involved.”

BeTTER SAID (Bringing STakeholders Together for Engagement in Research for the Selection of Arthroplasty Implant Devices) is funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award (2228-GHLF).