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The Global Healthy Living Foundation (GHLF) and CreakyJoints led a collaboration engaging stakeholders in patient-centered research to improve the safety of hip and knee replacement (arthroplasty) devices.
In partnership with the RAND Corporation and with support from the Patient Centered Outcomes Research Institute (PCORI), GHLF created BeTTER SAID (Bringing STakeholders Together for Engagement in Research for the Selection of Arthroplasty Implant Devices). During the past two years, BeTTER SAID has developed a cohort of patient partners prepared to participate on joint replacement research teams.
Patients with arthritis or joint trauma may seek arthroplasty—partial or total joint replacement—to improve functional status and reduce pain. For arthroplasty, the orthopedic surgeon may select from more than 100 implantable devices with several thousand potential combinations of individual components. Some implants may be used before data are available on their safety and comparative effectiveness relative to devices already on the market.
BeTTER SAID first convened in November 2014 to address joint replacement safety and identified device selection as a decision that should be guided with better evidence. BeTTER SAID is a coalition of patients, patient advocates, researchers, physicians/surgeons, and health system leaders that will examine strategies to improve implant device safety over time.
BeTTER SAID partners recognize the need to engage a wider circle of patients in training and discussion so that they are prepared to participate as full members of the research team.