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Created by CreakyJoints, the online, non-profit, patient support community with more than 80,000 members, in collaboration with the University of Alabama Birmingham, and supported by the Patient Centered Outcomes Research Institute (PCORI), a nonprofit, nongovernmental organization created by Congress, Arthritis Power is the first ever patient-led, patient-generated, patient-centered research registry for arthritis. Arthritis Power is part of PCORnet, the National Patient-Centered Clinical Research Network, a large, highly representative, national network for conducting clinical outcomes research.
Using a web-based and mobile application, and focusing on rheumatoid arthritis as well as other musculoskeletal conditions, the goal of Arthritis Power is to collect health data from tens of thousands of arthritis patients to support future research to compare treatments, identify new ones, and, perhaps, find elusive cures. Arthritis Power includes a committee of people living with forms of autoimmune arthritis called Patient Governors, who identify research needs for study development and prioritize research requests from the CreakyJoints patient community around the world. To learn more about the Arthritis Power Research Network, visit www.arthritispower.org.