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Tapering Rheumatoid Arthritis Drugs

The Global Healthy Living Foundation (GHLF), the parent non-profit organization for the CreakyJoints patient community, signed onto a letter yesterday urging President Trump not to take any action that would destabilize the health care supply chain at this sensitive time.

President Trump is considering a “Buy American” executive order aimed at discouraging drug supplies coming from overseas. The proposed order would mandate or encourage the U.S. government to only purchase drugs whose active pharmaceutical ingredients are made in the United States, with a similar rule for medical devices.

If signed, the executive order would threaten the health care supply chain in the midst of a pandemic that already has our health care system strained and scrambling. The Association for Accessible Medicines (AAM) says that if implemented, this requirement would:

  • Limit patient access
  • Increase risk of drug shortages
  • Increase the cost of medicine

Americans are already facing shortages of critical supplies needed to save lives during this coronavirus pandemic, such as face masks and diagnostic testing kits. A drug shortage would restrict access to essential medications, such as hydroxychloroquine, which would be especially detrimental for high-risk patients who rely on a consistent supply of their prescription medications to prevent complications of their chronic conditions.

Join our 50-State Network patient advocacy arm and DEMAND CONTINUED ACCESS TO MEDICATION AND DEVICES for all Americans during this public health emergency.

Submit the form below to sign up to be a volunteer advocate with our advocacy arm, the 50-State Network. Our advocacy team is monitoring this important issue and others.

We may need to call upon patient volunteers to share their experiences to effect change. We will work closely with you to find volunteer opportunities that make the most sense for you. This can include speaking with the media, sharing your story with legislators on Capitol Hill, writing an op-ed for local or national news outlets, and sharing important advocacy alerts with friends and family.

Make Your Voice Heard! Demand Continued Access to Medications During This Public Health Emergency

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About the 50-State Network

The 50-State Network is the grassroots advocacy arm of CreakyJoints and the Global Healthy Living Foundation.

It is comprised of patients with chronic illness who are trained as health care activists to proactively connect with local, state, and federal health policy stakeholders to share their perspective and influence change. Through public and personalized opportunities to advocate for the chronic disease community, the 50-State Network mobilizes patients to voice their concerns about access to treatment, quality of care, and the need to prioritize the physician-patient relationship. Learn more at 50StateNetwork.org.