Thanks to those of you who have already signed up for our “peer mentoring” call. This is an exciting new way for us to support and help each other on the journey of dealing with our illness.
When we meet next week, we will be talking about what your doctor does right. I chose that topic because I have been invited to be on a panel at the American College of Rheumatology meeting in Atlanta next month. It is a great opportunity to reach out to rheumatologists and give them the patients’ perspective on their care.
As with all of us, I suspect they will be more receptive to where they can improve if they get some examples of how they are doing it right. Where their care is spot on, and helps with healing of mind, heart and body. In order to get those stories, I want to hear from you.
Beyond my interest in the stories, we all need to hear how it goes well. Those reminders can give us the courage and the motivation to ask for what we need, or to walk away from what’s not working. We all know there is some care out there that doesn’t heal. So I want to listen to what does – what makes a difference for you.
By telling our stories in a confidential environment, like a phone conversation, we can gather strength. You are reminded that you are not alone – you share so much in common. That connection is encouraging and energizing.
So please sign up and join our new group. If you have any questions, don’t hesitate to email me.
I look forward to meeting with you next Wednesday, October 20 at 7:30.
When you sign up, we’ll send you the number and the pin code to join the conversation.