Patients, clinicians & researchers partnering to address the safety of joint replacement
Organized by the Global Healthy Living Foundation, CreakyJoints
in partnership with the RAND Corporation
Funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award (2228-GHLF)


Joint replacement surgery can be a pain. Talking about it shouldn’t be.

Register for a roundtable discussion to put your best (hip, knee) forward. Let’s bring the patient voice into joint replacement research.

Patient-engaged research can help fix problems like the safety of implantable devices. Over the past year, we met with patients, advocates, researchers, clinicians, and health systems leaders in Boston, Chicago and New York City to talk about device selection as a major factor in joint replacement safety. We believe that the choice of which device to use is an important health care decision that can be guided with better evidence.

Participating in this patient-led project can lead to changes in the way care is delivered. For example, through your involvement, you may contribute to improvements in the safety of joint replacement and implant devices. Or you may help initiate improvements in the way your individual care is delivered, like making joint replacement follow-up at home possible.

Bringing STakeholders Together for Engagement in Research for the Selection of Arthroplasty Implant Devices (BeTTER SAID) is the name of our webinar and roundtable series. This project is funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award (2228-GHLF).

Registration is now closed

Click here to add your name to the waiting list.

Where and When:

  • LOCATION: Chicago Community Trust, 225 N. Michigan Ave., Chicago, IL
  • DATE: Thursday, September 8, 2016
  • TIME (choose one): 9 -11 a.m. or 12–2 p.m. or 6-8 p.m(Central Time Zone)


Roundtable Objectives:

  • Review what we learned in conversations with patients about the decisions that are most important to them (Note: We conducted a series of webinars earlier this year where patients shared their experiences with joint replacement and discussed how they could become involved as research partners);
  • Prepare patients to work with clinicians and other stakeholders in arthroplasty research; and
  • Discuss a research agenda that would involve patients, clinicians and other stakeholders.


We invite you to attend if you:

  • Have had recent hip or knee replacement surgery (within the past 5 years) OR are a candidate for surgery
  • Are a health system leader, clinician or physical therapist who works with patients who have had hip and/or knee joint replacement surgery
  • Are age 18 or older
  • Are a U.S. resident
  • Are able to travel to attend an in-person roundtable*

*All roundtable participants will receive $30 for local travel and a $50 honorarium ($80 total). Light refreshments will be served.


About the Speakers

BenNowellBen Nowell, PhD, MSW, is the Director of Patient-Centered Research at the Global Healthy Living Foundation, CreakyJoints. He has more than 10 years of experience directing health care projects and facilitating collaborative discussion among patients and diverse stakeholders. Most recently, as co-principal investigator for ArthritisPower (the AR-PoWER Patient-Powered Research Network), Dr. Nowell manages the development of a patient-powered research registry infrastructure. His infrastructure development has included the recruitment and selection of a diverse board of Patient Governors (patient leaders from across the country living with rheumatic conditions) and a Research Advisory Board (rheumatology researchers and partners who provide counsel and support for proposed ArthritisPower comparative effectiveness research).


Concannon ThomasThomas Concannon, PhD, is a Senior Policy Researcher at the RAND Corporation, Assistant Professor of Medicine at Tufts University School of Medicine, and Associate Director of Comparative Effectiveness Research (CER) Programs at the Tufts Clinical and Translational Science Institute. His research is focused on patient care in emergency, acute and post-acute settings using administrative claims, survey, and other types of data. He has been active for over 20 years in efforts to engage patients, consumers, communities, and other stakeholders in healthcare research.


shilpaVenkatachalamShilpa Venkatachalam, PhD, MPH, is the Research Associate at the Global Healthy Living Foundation, CreakyJoints. Prior to joining the organization, her work has focused primarily on policy and chronic disease outreach, awareness, research and management. She has engaged with public health organizations in India, in the U.S. and more recently in Chad, Africa. She worked on a World Health Organization–funded study in public health. In addition, she recently gave a video conference presentation on Sustainable Development Goals and Global Health for the Ambassador’s Club at the United Nations. She was also selected for the Harvard Global Equity Initiative American Cancer Society for advocacy training in cancer.



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