ACR2017: We are ACR’s Special Reporters

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Puerto Rico Rheumatology Relief
Abstracts and Presentations
Trending Resources
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ACR is the largest global rheumatology medical conference of the year with rheumatologist and researchers from across theworld meeting to discuss clinical pathways, treatments and research.

This year CreakyJoints will be the ACR special reporters, with live-streams from the floor on November 5, 6 and 7, as well as our usual in-depth stories on CreakyJoints.org and leading presence on Twitter and Facebook during the conference.





This year, everyone at ACR has a special responsibility to reach out to our friends and colleagues in Puerto Rico so they can provide services to people with arthritis.

The situation in Puerto Rico is awful, as we’re sure you know.

CreakyJoints, along with local patient and physician groups in Puerto Rico, and with the help and support of the American College of Rheumatology has set up a special Puerto Rico Rheumatology Relief fund. We are matching the first $5,000 donated, and 100 percent of the funds will go to Puerto Rico rheumatology programs like the ones listed below:

  • Create and continue call center for patients and rheumatologist to identify needs
  • Supply medications
  • Supply medical equipment when necessary
  • Provide or find transportation to facilitate patient access
  • Provide basic needs to patients who have lost it all
  • Create pop-up or mobile clinic to reach patients on remote areas
  • Partner with other organizations to provide all of the above more effectively

This is a very ambitious program and we are focusing our fundraising efforts at ACR, so please click below to give as much as you can, or stop by the CreakyJoints table at ACR to donate. CreakyJoints is part of the Global Healthy Living Foundation, a 501(c)(3) non-profit organization. Your donation is tax deductible. You will receive a receipt for your donation by email.

We’ve already received over $5,200 in donations.

Click here to take action

Puerto Rico Rheumatology Relief Board:

Louis Tharp, Executive Director, Global Healthy Living Foundation
Oscar Soto-Raices, MD, San Juan, Puerto Rico Fundacion Enfermedades Reumaticas
Griselle Lugo, Executive Director, Fundacion Enfermedades Reumaticas
Jonathan D. Krant, MD, GHLF/CreakyJoints Medical Director


Abstracts and Presentations

This year CreakyJoints and ArthritisPower data is featured in eight research presentations, in topics ranging from reproductive health to shared decision-making.

The full list of CreakyJoints posters and oral presentations* to be presented at the 2017 ACR/AHRP Annual Meeting include the following:

  1. Methotrexate Use and Fatigue in Rheumatoid Arthritis Patients: Results from a National Patient Registry
    Poster Sunday, November 5, 2017; 9:00 AM – 11:00 AM

  2. Patients’ Experiences and Attitudes about Non-Medical Switching of Biologics: Results from an Online Patient Survey
    Poster Sunday, November 5, 2017: 9:00 AM-11:00 AM

  3. Tough Choices: Understanding the Medication Decision-Making Process for Women with Inflammatory Arthritis during Pregnancy and Lactation
    Poster Monday, November 6, 2017: 9:00 AM-11:00 AM

  4. Answering Reproductive Health Questions That Your Patients Want to Know: Impediments to Family Building and Risks of Contraception
    Poster Monday, November 6, 2017; 9:00 AM – 11:00 AM

  5. A Trial Testing Strategies to Enhance Patient Understanding of Drug Information: Experience Recruiting Subjects through an Online Patient Community
    Oral Presentation Monday, November 6, 2017; 4:30 PM – 6:00 PM

  6. Linguistic Differences in Gout-Related Online Content: A Comparison of Professional Health Literature for Consumers Vs Patients’ Online Discussions of Gout
    Poster Tuesday, November 7, 2017; 9:00 AM – 11:00 AM

  7. Assessing RA Disease Activity with PROMIS Measures Using Smartphone Technology
    Oral Presentation Tuesday, November 7, 2017; 2:30 PM – 4:00 PM

  8. Preference Phenotypes Can be Used to Support Shared Decision Making at the Point-of-Care
    Oral Presentation Tuesday, November 7, 2017; 2:30 PM – 4:00 PM

Trending CreakyJoints Resources

  ArthritisPower

the first ever patient-led, patient-centered research registry for joint, bone, and inflammatory skin conditions, ArthritisPower is now 11,500 patients strong.

Click here to learn more

  Patient guidelines

This year CreakyJoints published three new patient guidelines – A Patient’s guide to Psoriatic Arthritis, Ankylosing Spondylitis, and Family Planning.

Click here to see all of the CreakyJoints Patient Guidelines

 Partnership with United Rheumatology

To connect our members directly with rheumatologists at the forefront of community-based care, CreakyJoints is collaborating with United Rheumatology to provide direct answers to your rheumatoid-related questions about symptoms, illnesses, treatments and research. United Rheumatologist doctors are taking time to field questions from the CreakyJoints community.

Read the latest post here


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